Tuesday, 8 May 2012

Congratulations you have a new psychiatric disorder!!



I rarely get pissed off but this just pushed me over the edge.

Apparently in the world of medical assessment there has come a time where we have to make a choice. Are we sick and able to deal with it without complaint? Or are we sick and want the doctors to freaking well do something about it? Apparently we can no-longer have both without being told we are mentally ill.

I repeat. If we complain about being ILL, then our doctors may be given the option of labelling you with a psychiatric disorder. Yeh. That well and truly pisses me off. MEGA amounts.

The American Psychiatric Association wants to have the power of licensing the application of a mental health diagnosis to all medical diseases and disorders. In laymans terms this means that if you think about your disease, you think too much about the terrible pain you are in because of your disease, you know you are ill, the doctors know you are ill and yet they can't find what is wrong with you, then you are automatically placed into the catergory of having the proposed psychatric diagnosis of 'Somatic Symptom Disorder'.

They diagnose this as thus:


Criteria A, B, and C must all be fulfilled to make the diagnosis:

A. Somatic symptoms: One or more somatic symptoms that are distressing and/or result in significant disruption in daily life.

B. Excessive thoughts, feelings, and behaviors related to these somatic symptoms or associated health concerns: At least one of the following must be present.

(1) Disproportionate and persistent thoughts about the seriousness of one's symptoms.

(2) Persistently high level of anxiety about health or symptoms

(3) Excessive time and energy devoted to these symptoms or health concerns

C. Chronicity: Although any one symptom may not be continuously present, the state of being symptomatic is persistent (typically >6 months).”


So you have have a disease or illness that is distressing or disrupts your life (YAY- you fit criteria A), your disease or illness also in your distress makes you think about your disease or illness, (say you have non epileptic seizures and you are worried you're going to die as I did- YAY You fit Criteria B) and then if this continues for say 6 months, or more than congratulations you have the whole freaking set and are the proud owner of a new psychiatric disorder...

Do you see why i'm pee'd off. I have ME and Conversion Disorder, I have symptoms that cannot be defined or diagnosed through one specific test. Yet my illnesses disrupt my ife, distress me and cause me to spend excessive time worrying that I need to conserve energy for the next day and it has so far lasted 6 years.....

I might as well diagnose myself now then eh, American Psychatric Association...

Yes this deals predominately with pain and symptoms without explaination such as MEGA SHOCK; ME, but if you have a pain in your head, back, arms, legs or ANYWHERE and the doctors can't find out whats wrong with you then they are at fault not us! They need to find the cause not stick another psychatric label on someone because they haven't got the answer. And if they want the answer they need to spend more on biomedical research!

BUT APPARENTLY THATS NOT HOW MEDICINE WORKS ANYMORE!!!

As a good friend of mine (who won't mind being quoted) said:

'My guess is that the pharma companies will just have another cash cow for all the drugs they have that are fast running out of patent time- you have SSD- here take this little green pill that we have marketed to doctors for the treatment of patients with SSD a brand new psychiatric catergory.'

So here is where you good people come in, this is still being debated and decided on, in fact its in its final stages RIGHT NOW.

"The DSM-5 Web site (
www.dsm5.org) is open to a third and final round of feedback. For six weeks, patients and their loved ones, members of the profession, and the general public can submit questions and comments via the Web site. All will be read by members of the appropriate DSM-5 work groups."

I URGE everyone with an invisible disorder to register their feedback, we CANNOT under any circumstances allow this to happen!! The medical boards cannot be allowed to put us with legitimate medical conditions in a group and label us with a psychiatric disorder!! We are NOT mental. We are ILL. And becoming stressed and upset and having your time consumed by the stress and distress of our disorders is NORMAL.

Please! If you do nothing else today, PLEASE PLEASE PLEASE submit your comments on the website above!! They need to know how wrong and damaging this could be for all of us. Because we all know as soon as America signs up and categorises us as thus, the UK won't be far behind!!



6 comments:

  1. Wow! I knew America wasn' really at the top regarding health care, but that proposal is quite mental, and just plain wrong!
    Must say though, that I really enjoy your blog, makes me think a lot more abouth the illnesses we don't see. Plus your brilliant writing style makes me laush a fair bit!
    I have also passed it on to as many friends I can think of:)
    xx
    Silje

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  2. There are some excellent examples of patient submissions here BTW:

    http://dxrevisionwatch.wordpress.com/dsm-5-proposals/dsm-5-submissions-2012/3/

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  3. So you haven't been diagnosed with M.E.?

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  4. Thanks for your interest. Yes, i actually have, but if you know much about M.E. it takes so long for a diagnosis to be confirmed as others can attest, that whilst you are waiting for a diagnosis, some people may fall through the cracks and be diagnosed with SSD.

    What i was trying to illustrate through using myself as an example was that if you complained, your illness (as my M.E and CD do) disrupt your life, your doctor could choose instead to give you this psychiatric disorder instead of getting to the bottom of the proper diagnosis.

    This new psychiatric disorder that the APA is trying to push through could have MASSIVE repercussions for everyone. And also lead to lazy doctors, trying to cut corners both economically and medically. Testing by exclusion of all other illnesses is expensive and should this APA decision get through i can almost guarantee there will be doctors out there who would be more willing to diagnose SSD than run the expensive tests and reach the proper diagnosis.

    I Hope this helps,

    Twitch

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  5. Submissions for the second DSM-5 stakeholder review (May-July 2011), including submissions from international patient organizations, are archived on my Dx Revision Watch site here: http://wp.me/PKrrB-19a

    Under the "Somatic Symptom Disorders" category proposals, there are also proposals for:

    J 02 Conversion Disorder (Functional Neurological Symptom Disorder)

    http://www.dsm5.org/ProposedRevision/Pages/proposedrevision.aspx?rid=8#

    that you might want to check out, including the proposal for the removal of previous criterion B:

    '"Psychological factors are judged to be associated with the symptom or deficit because the initiation or exacerbation of the symptom or deficit is preceded by conflicts or other stressors" We propose that this criterion be eliminated and discussion of etiologic factors placed in accompanying text...'

    In the UK, Chapter V of ICD-10 and the Primary Health Care version of ICD-10 are also used for coding mental health disorders.

    ICD-11, the replacement for ICD-10, is currently under development and scheduled for implementation in 2015+.

    The current proposal for the Beta draft of ICD-11 is to rename the ICD "Somatoform Disorders" section to "Bodily Distress Disorders" and include three severities of "Bodily Distress Disorder" - of "Mild," "Moderate" or "Severe" BDD in addition to the existing ICD-10 "Somatoform Disorder" categories.

    For more information on ICD-11 see:

    "Bodily Distress Disorders" to replace "Somatoform Disorders" for ICD-11?: http://wp.me/pKrrB-1Vx

    ReplyDelete